At least thats what I’m hoping for.
Last weekend Baby Xay has his hernia surgery. We arrived Thursday night to spend some time with him while he was awake and alert and boy did he struggle. His gas was so bad and he was trying so hard to get it out that he just wouldn’t stop crying. He can’t make any noise so it was equally heart wrenching. I don’t think I’ve ever seen him crying that hard but he did eventually calm down once he got some meds. This is why this surgery was so important. Whatever relief it can give would be much appreciated. Friday was the big day so we had to get up at 5:30am so we could be with him before they whisked him away. We even managed to be with him together as the nurses didn’t care. (They are all quite fond of Xavier and gush over him every chance they can.) The anesthesiologist came to talk to us about what she was going to do with the meds and later the surgeon came to talk about the procedure and the possible risks. Talk about the longest 2 hours ever waiting in the family room. I had to leave to go to the pumping room and by the time I finished, I got a call that he was out of surgery and back in his pod. So I darted over to his bed and he was sleeping peacefully. Surgery was successful and his “lower region aka scrotum” looked normal again. He had minor issues that evening as his pain meds began to wear off but once he got more meds, he was fine. Previously, we were told that his hernia was bilateral, meaning he would require two surgeries to get everything fixed. Once the surgeon got a better look, she concluded that everything could be fixed with just one surgery!! Whew talk about relief! So glad that she was able to get it done. One cool thing is we now have matching scars because he was patched up with the same type of glue as I when I had my C-section.
Xay is still being weaned aggressively on his vent and is doing amazing. His eyes are improving so it’s only a matter of time before we start having “the talk,” meaning next steps for coming home. Just waiting on the eye doctor to feel comfortable enough for his release. In the meantime, I’ve spoken with my insurance and their doctors “would possibly consider approving the transportation back to Indiana” LOL whet? Said it to me like they were doing me a favor. Yall I looked at my phone like bish gone somewhere. This was never a one way trip situation. He needs to be close to his parents for the remainder of his care not 200 miles away. He’s getting older and needs to go back to seeing us everyday in person. So we shall see how these next couple of weeks go. It was so sweet to see my mom offer both her paychecks when I told her about the possible issues with him being transported back. I’ve seen her have to throw her weight around the many times I’ve been hospitalized from childhood to adulthood, so don’t worry mom, I got this. You’ve taught me well.
Throughout all of this, the hospital is now changing their policy on how they treat NICU transfers. Previously, when babies get sent there to see the ophthalmologist, they don’t think about fixing any other issues that the baby has so that they don’t prolong their stay after the ophthalmologist says it’s ok to go back. Now, they will treat the baby right away no matter what. We waited over a month for them to finally decide do something about his care when his hernia could have been taken care of immediately and he likely would not have had to be in all this pain. Never again I tell you, never again.